Between May 16 - 20th, we took our AiArthritis Voices 360 Talk Show LIVE, to help teach more people who we are, what we do, and how we impact the lives of those affected by AiArthritis Diseases while honoring the 450 million people worldwide living with our diseases. It also served as the starting line for our 2020 fundraising efforts.
Welcome to this episode of AiArthritis Voices 360, featuring a conversation we had on World AUTOimmune & AUTOinflammatory Arthritis Day ( AiArthritis Day) with our Honorary Chair, Angela Durazo - race car driver, award-winning actress, and a person living with Rheumatoid Arthritis (RA). Angela was asked to be our Honorary Chair, in part, because of her RA and AUTO racing connection, but more importantly, she exemplifies what it means to "shift gears" when Ai Arthritis takes away your identity.
Angela's triathlon ambitions came to a halt four years after she was diagnosed with RA after her 24th birthday. Multiple surgeries and much physical therapy later, she was determined to find a way to reinvent herself in a way that truly represented her core being. "I used my pain and I turned it into power," she says in this heartfelt conversation. "You too can reinvent yourself in a way that represents you, that aligns with your core values."
Many of us have experienced the 'Who am I Now?' phenomenon, as these diseases challenge our capabilities to continue doing some of the things we once loved - things that we identify with as personal identifiers. The invisibility of these diseases adds to the frustration. But we can shift gears, we can find our new normals, all without having to change who we are as a person.
LISTEN TO THE EPISODE THEN BE SURE TO TAKE A SEAT AT THE TABLE BY JOINING THE CONVERSATION!
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If you are a person affected by AiArthritis diseases and you would like to "pull up a seat at the table" and directly communicate with Tiffany, Deb, Patrice, and Katie about this topic, join our AiArthritis Voices program, where you can be on the insider circle of the talk show!
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Angela Durazo made history in 2018 as the first female to enter the F4 US Championships. Not only did Durazo compete in the 37-car field of the USF4 series, she forged her F4 talent with a 1st place win in the Formula IMR Challenge series. Durazo also secured two 2nd place podiums of the 6 race F4 Winter Championships series and she took home a notable 5th place in the Fp4 F4 West Coast Championships. She is also a 2x award winning Actress as well as a former professional Triathlete (Sprint and Olympic distance).
We would like to add, Angela is a real person, a human being who experiences disease challenges like the rest of the community. We have all heard, "But you look great!" - as a public figure she hears it more than others... and with that comes judgment (even within our own disease community). At
AiArthritis, we believe in celebrating our achievements while showing the reality of these diseases. That's why we chose Angela - she is not afraid to show the bad days, too. Thank you, Angela.
Listen to mini episode 4 where Tiffany discusses the phenomenon of a shifting identity. The way we see ourselves can change radically after diagnosis or symptom onset of an AiArthritis disease. But, as Tiffany points out, “having these diseases isn’t the end of the world. It’s just another way of living in it.”
Listen to mini-episode 11 as Tiffany introduces the challenges associated with invisible illness. Hear Tiffany's story about having an invisible illness.
Listen to episode 12 where Tiffany and Effie discuss the challenges of living with an invisible illness or disability.
Listen to mini-episode 16 where Tiffany discusses the challenge of having an unpredictable disease when you are in a situation that demands predictability. She shares an experience she had when summoned to jury duty.
Click here to find out more about our Rheumy Rounds series!
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