Care Partners/

Support Network

Supporting someone with an AiArthritis diagnosis can feel overwhelming, as the challenges and uncertainties that come with such a condition can be daunting. However, rest assured that you are not alone in this journey, as we are here to provide you with the support and guidance you need to navigate through the complexities of managing AiArthritis. Together, we can work towards empowering you to better understand the diagnosis, explore treatment options, and find ways to improve quality of life.

These AiArthritis resources are designed to support you as a care partner or part of a support network. They offer valuable information to help you understand and manage your loved one’s condition. With these tools, you’ll be better equipped to provide the care and support they need, while also gaining the knowledge necessary to assist in making informed decisions about their health. By utilizing these resources, you’ll be empowered to confidently guide and support your loved one through their journey.

RESOURCES FOR the support network/care partners

What Does It Feel Like?

This resource provides a detailed understanding of what it’s like to live with an AiArthritis disease, offering insights into the physical and emotional challenges patients face daily. Care partners can greatly benefit from downloading this resource as it equips them with the knowledge needed to empathize with their loved ones and better support them through the complexities of managing a chronic, unpredictable condition. Receiving a diagnosis of a potentially live-altering chronic illness can throw someone for a loop.

Support Tool

This guidance was developed in response to family members (significant others, siblings, children of parents with AiArthritis diseases) requesting help to manage their stresses, concerns, and emotional issues associated with caring for someone living with AiArthritis diseases. Fill out this worksheet together to learn how to communicate how to support each other through this journey.

Genetics: Role in AiArthritis Diseases

This resource post explains how genetics can influence the development of autoimmune and autoinflammatory arthritis diseases, helping you understand the role genes play in these conditions. If you’re a care partner, downloading this resource is valuable because it equips you with essential knowledge about your loved one’s genetic risks, allowing you to better support them in managing their health.

Managing My Disease

Check out these resources, which may help:

• Disease List: Explains why AiArthritis diseases are grouped together and breaks out to pages for each disease
• OA vs AiArthritis: Describing the difference between osteoarthritis and autoimmune or autoinflammatory arthritis
• Treatment: Goes over the different types of treatment, both pharmacological and non-pharmacological
• AiArthritis Blog

Have questions? Email us at info@aiarthritis.org

Sometimes the best medicine is diving in to learn more, meeting those who have similar lived experiences, and doing activities that can help to improve your health and the AiArthritis community!

Where to Start:

• Follow AiArthritis on Social Media:
  

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Talk Show Episodes For the Support Network/Care Partners

Supporting someone with an autoimmune or autoinflammatory arthritis disease can be both rewarding and challenging, especially when navigating the complexities of their condition. While it’s crucial to stay informed and connected with healthcare professionals, our AiArthritis Voices 360 Talk Show—led BY PATIENTS—serves as a valuable resource for care partners, support networks, and loved ones who want to better understand and assist those they care about.

We have selected some episodes we think may help you in your role as a care partner: