AiArthritis logo showing stylized infinite loop symbol in red with black dots, above organization name for International Foundation for Autoimmune & Autoinflammatory Arthritis.
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RANT!

You Rant, We Listen & Help


This is a safe space, free of judgment to get that one thing, or one million things, off your chest and remain anonymous (if you so choose!). We are here to listen to you, your experiences, perspectives, and opinions - we truly want to hear them all.


Everything we do at AiArthritis starts because patients need something to help improve their healthcare journey. As patients ourselves, we understand, we listen, and we have conversations with our community about these issues. The "Rant" was created as a way to capture the things that frustrate you the most so we can try and help. It's the first step in our six step problem-solving process.


Persons reading these are employees and volunteers of AiArthritis who are persons affected with AiArthritis diseases. WE UNDERSTAND!



Submit Your Rant Here!

The rant you are submitting can be done anonymously or you can provide your name and contact information.


How we use RANTS!

  • Our RANT! program is one of the most important programs we have, because it is a way for us to collect patient experience stories. These are vital to help us justify a need for a program or resource and also to use along side existing projects so the patient voice and opinion is infused in everything we do.
  • RANT! for Education/Awareness. Help our work to teach the world more about our complex diseases so we can improve detection, diagnosis, understanding/support, and other patient-reported needs.
  • RANT! for Advocacy/Legislative Efforts. Your stories can help pass legislation and regulations that improve access to treatments and therapies.
  • RANT! for Research. Our diseases are unique to the individual, yet most research only includes a percentage of patients and often lacks diversity (ex: cultural, ethnicity, duration of disease, people with comorbidities). We need to collect real experiences from ALL patients so we can incorporate patient experience data into science.


Privacy & Submissions:

  • By submitting the rant you are giving AiArthritis permission to use your submission in communication pieces like our website or social media, or in our work to identify issues facing our community. We will only use your first name if you want us to, otherwise your rant will remain anonymous.
  • We will not add your contact information to any of our other contact lists, your information will remain on this list only. We will not sell your contact information to any 3rd party.


Why do you need my location? Patient stories, including RANTs, are essential to help explain the frustrations and, in turn, changes needed, to improve our lives. This is especially true when it comes to laws, regulations, and healthcare system changes. For example, if you are ranting about losing access to your treatment, we could possibly use your example to show decision makers in your district, state, province, or country why change is needed. That's right - giving your location can impact change for 100's, 1000's, or even millions! We will not share your information (name, address, location) with anyone who we share stories with unless we have your permission to do so.


Submit Your Rant

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