Coalitions

International

• Alliance for Safe Biologic Medicines (ASBM) - It is the mission of the Alliance to serve as an authoritative resource center for the public, medical community, the U.S. Food and Drug Administration and government regulators worldwide as biosimilars policies are developed and implemented.  https://safebiologics.org/ See our work on biosimilars education.
• Axial Spondyloarthritis International Federation (ASIF) - To increase awareness of Axial Spondyloarthritis (axSpA) and knowledge of the disease around the world to a key stakeholders be they people living with axSpA, health care professionals, researchers, pharmaceutical organizations, policy makers or the general public. http://www.asif.info/
• Global RA Network  Founded in 2016 by Rheumatoid Arthritis (RA) patient organizations and leaders from 18 countries, the Global RA Network was formed to build international relationships and identify and work on common goals and initiatives to improve the lives of people living with RA around the world.  Arthritis Consumer Experts (Canada) serves as the Network’s secretariat.  Ai Arthritis is the only organization representing the United States of America.   https://globalranetwork.org/
• Global Advocacy Alliance  a global community of non-profit organizations and support groups who are committed to changing the way the world tackles rare diseases by collaborating to realize positive change. Together, members can connect, empower and inspire the rare disease community. https://globalgenes.org/foundation-alliance-2/
• Health Technology Assessment International (HTAi)  - A community of multidisciplinary advisors, academics, scientists, professionals, public & private organizations, students, patients and citizen members, dedicated to better health for all people and the future of HTA worldwide. https://htai.org/
• International Alliance of Patients' Organizations (IAPO)  - A unique global alliance representing patients of all nations across all disease areas and promoting patient-centered healthcare across the world.  https://www.iapo.org.uk/  
• International Federation on Ageing - An international non-governmental organization (NGO) whose members are government, NGOs, academia, industry, and individuals in nearly 80 countries. IFA believes that all these members working together are essential to help shape and influence policy and good practices. About Us | International Federation on Ageing (ifa.ngo)
• ISPOR - The leading professional society for health economics and outcomes research (HEOR) globally. The Society’s mission is to promote HEOR excellence to improve decision making for health globally.  https://www.ispor.org/
• Patient Focused Medicines Development (PFMD) - A global collaborative initiative benefiting patients and health stakeholders by designing a patient-centered healthcare system WITH patients and all stakeholders. https://patientfocusedmedicine.org/
  
• Personalized Medicine Coalition (PMC) - Representing innovators, scientists, patients, providers and payers, promotes the understanding and adoption of personalized medicine concepts, services, and products to benefit patients and the health system.  Ai Arthritis is currently the only organization involved focusing on all of the diseases under the  Ai Arthritis umbrella. http://personalizedmedicinecoalition.org/
• Society of Participatory Medicine - A 501(c)(3) not-for-profit organization devoted to promoting the practice of participatory medicine, which enables collaborative communication and information sharing among patients, caregivers, and healthcare professionals. https://participatorymedicine.org
• World Patients Alliance (WPA) - The umbrella organization of patients and patients’ organizations around the globe that seeks to ensure that all patients have access to safe, high quality, and affordable healthcare everywhere in the world.  https://www.worldpatientsalliance.org/

US Based

• Ensuring Access through Collaborative Health (EACH) and the coordinating Patient Inclusion Council (PIC) - AiArthritis led, disease agnostic two-part coalition addressing national government drug affordability reviews at the state (PDAB) and federal (CMS IRA) level. https://eachpic.org/
• All Co-Pays Count Coalition - Group led by the US Arthritis Foundation to address patient access to prescribed medicines due to insurance "accumulator" issues.  We are also members of and support several break out, state-level All Co-Pays Count Coalitions. 
• Alliance to Save America's 340B Program (ASAP 340B) - a partnership of community health centers, patient, provider, and consumer advocates, and leaders from the biopharmaceutical industry working to ensure the 340B program supports true safety-net providers and the communities they serve.  https://www.asap340B.org.
• Alliance for Transparent & Affordable Prescriptions (ATAP) - This group of stakeholders has united to address the rising costs of prescription drugs and patient access to affordable treatments by regulating Pharmacy Benefit Manager (PBMs) practices and reforming the drug industry through educational outreach and grassroots advocacy efforts on both federal and state levels.  https://atapadvocates.com/
• California Chronic Care Coalition (CCCC) - Unique alliance of more than 30 leading consumer health organizations and provider groups that promote the collaborative work of policy makers, industry leaders, providers, and consumers to improve the health of Californians with chronic conditions. https://www.californiachroniccare.org/about-cccc/
• Chronic Care Policy Alliance (CCPA) - A network of state and regional advocacy organizations advancing public policy that improves the lives of those living with chronic conditions and diseases. Dedicated to achieving better access to quality, affordable health care, CCPA brings together advocates who share common goals and lends its experience in legislative action and public policy creation to support statewide and regional networking development. https://chroniccarealliance.org/
• Clinical Trials Transformation Initiative (CTTI) - Their mission is to develop and drive adoption of practices that will increase the quality and efficiency of clinical trials. They evaluate clinical trial issues and help find solutions.   https://www.ctti-clinicaltrials.org/  
• Friends of National Institute of Dental and Craniofacial Research (FNIDCR)  - Section member of the American Association for Dental Research (AADR) and International Association of Dental Research (IADR).  http://www.iadr.org/AADR/Government-Affairs/Friends-NIDCR
• Innovation and Value Research's mission is to advance the science, practice and use of value assessment in healthcare to make it more meaningful to those who receive, provide, and pay for care. The goal is IVI is to build a community to create rigorous, innovative and relevant methods and translational research that facilitates patient-centered value assessment and emphasizes flexibility and usability for the unique decision contexts of individual decision-makers. http://www.thevalueinitiative.org/ 
• Let My Doctors Decide (LMDD)  - Our organization  holds an Advisory Task Force Chair on this US national partnership of leaders across health care working in support of curbing step therapy practices. We believe treatment decisions should always be made by patients and trusted health care professionals, not insurance companies or pharmacy benefit managers.  https://letmydoctorsdecide.org/about .  See the work we are doing in regards to Step Therapy:  Ethics Investigation,  ACT II,  Preparing Patients for Precision Medicine.
• Medicare Access for Patient Prescriptions (MAPRx)   - MAPRx is a coalition of patient, family caregiver, and health professional organizations committed to lifeguarding the well-being of patients with chronic diseases and disabilities who rely on Medicare Prescription Drug Coverage.  https://maprx.info/
• National Coalition of Autoimmune Patient Groups (NCAPG)  - Hosted by AARDA (American Autoimmune Related Diseases Association). Mission: To consolidate the voice of autoimmune disease patients and to promote increased education, awareness, and research into all aspects of autoimmune diseases through a collaborative approach.  https://www.aarda.org/who-we-are/ncapg/
• NIAMS Coalition  - (National Institute of Arthritis and Musculoskeletal and Skin Diseases) Two of our Founders, Tiffany Westrich & Tami Brown, are honored to serve on the NIAMS Coalition. The Coalition is a group of professional and voluntary organizations concerned with the programs of the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS).  https://www.niams.nih.gov/about/partnerships/niams-coalition
• Partnership to Improve Patient-Centeredness (PIPC)  - works to advance the principles of patient-centeredness in an evolving healthcare system by uniting a diverse, broad-based group of health care stakeholders who promote giving a voice to patients, giving choice to patients, and advancing value for patients. This group strongly works on advancing patient voices in value measurements.   http://www.pipcpatients.org/
• Partnership to Protect Coverage (PPC)  - a loosely affiliated group of patient and consumer advocacy organizations that work together to advance our shared goal of ensuring that health care coverage is affordable, accessible, and adequate.  https://www.protectcoverage.org/
• Patient & Provider Advocates for Telehealth (PPATH) - Coalition dedicated to advancing policies that ensure robust coverage and minimal access obstacles for those who rely upon telehealth. http://www.telehealthadvocates.org/
• Ryan White Grantee 340B Patient Advisory Committee  - focuses on how medical debt and the federal 340B Drug Pricing Program impact patients with chronic illnesses and rare diseases.  https://www.adapadvocacy.org/advisory_committees.html
• Safe Step Act Coalition  - Led by the National Psoriasis Foundation, this is the prominent group in the US working to help legislative efforts surrounding step therapy. To view our organizations work in step therapy, please view our  Ethics of Step Therapy Project. 
• State Policy Principles to Support Access to Biomarker Testing - Coalition led by the Cancer Access Network to support principles and advocacy efforts to  advance solutions that reduce barriers to biomarker testing access and promote patient outcomes as a result of use. https://www.fightcancer.org/state-policy-principles-support-access-biomarker-testing
• Telehealth Access for America - A public education campaign supported by leaders in health care committed to better care, expanded patient choice, and protecting access to critical telehealth services.  https://telehealthaccessforamerica.org
• Value-Based Chronic Disease Collaborative (VBCDC) - Initiative led by the National Hemophilia Foundation and Impact Education, LLC.  Enlists Patient Advocacy Groups, Health Care Payers and Purchasers to Improve Access to Quality Care and Address Issues Surrounding High-Cost Diseases.  (Microsite under construction)
• Value in the States - Led by the US Arthritis Foundation, focusing on value, QALY, and discriminatory access issues.
• Value of Care Coalition - Led by the Alliance for Patient Access (AfPA), addressing patient and provider policy issues that focus on quality, patient-centered care. https://valueofcarecoalition.org/about/