AiArthritis logo showing stylized infinite loop symbol in red with black dots, above organization name for International Foundation for Autoimmune & Autoinflammatory Arthritis.

Advocacy & Public Policy

Our Role in Advocacy

  • We impact policy and legislation through personal patient experiences, collaborative support, and innovative programs that aim to increase the number of patients who have a voice in public policy. Everything we do at our organization is based on listening to our peers (patients and caregivers) and identifying what they say needs to happen to improve their healthcare journey. Through programs such as RANT!, our grassroots, patient-led policy education classroom, and the Patient Inclusion Council (PIC) - a patient/caregiver coalition addressing drug affordability and access issues, and peer-to-peer social media campaigns, we are elevating patient voices past the traditional advocate who is used to being "at the table".


  • Research Advocacy.   We strongly believe that credible research can influence policy. We aim to use data collected through our peer-to-peer conversations - and associated quantitative research - to advance legislation that impacts quality of life, access to treatments, and continuity of care.



Contact Your Legislator (USA currently) OR Send Your Story to AiArthritis and We Will Help Make Sure Your Story is Heard!

SHARE YOUR STORY

Our Advocacy Team

"We don't represent the patient voice, we are the patient voice."

The following individuals all play a key role in managing our public policy department at AiArthritis. 


Policy Priorities for 2025

Precision Medicine/Biomarkers

Since 2015, we have worked tirelessly to ensure therapies match the right patient at the right time - as we are all individual and require different treatments to ensure high quality of life.

Research Advocacy

 We are launching our NEW AiArthritis Database, housed within FORWARD: National Data Bank for Rheumatic Diseases, which will focus on precision and personalized medicine/therapies and early diagnosis. This data will be used to influence public policy.

Utilization Management (UM)

Includes step therapy, prior authorization, non-medical switching, as well as AI (artificial intelligence) in association with UM practices. We strongly advocate that treatment decisions be made between the patient and their practitioner and to maintain continuity of care (access).

Value Measurements/Health Technology Assessments

We believe patient input, perspectives, and priorities should guide discussions about the "value" of treatments and practices associated with institutional assessments should be curbed.

Biosimilars

As biosimilars enter the marketplace on a broader scale, AiArthritis plans to help our peers through education and fighting for both access and consideration for those who their doctors feel are not candidates for switching.

Drug Affordability Initiatives

As groups such as the Centers for Medicare and Medicaid Services (CMS) and Prescription Drug Affordability Board (PDAB)s emerge in efforts to curb drug costs, AiArthritis will work diligently to include patient voices and ensure access to treatments is uninterrupted.

Transparency/PBMs

We believe in transparency for Pharmacy Benefit Manager (PBM) practices, including associated prescription drugs costs,  to ensure patient access to affordable treatment. USA issue

Alternative Funding Programs

As third-party groups create schemes that appear to save therapeutic costs, AiArthritis will remain diligent to protect patients to ensure they are able to access the therapies they are prescribed. USA issue

Copay Accumulator/Maximizers

With the rise of USA insurance copay diversion programs, patients may be at risk of losing coverage for their treatments mid-year. We aim to educate patients about the risks associated and teach those impacted by them to help us change this practice.

340B Program

A USA program meant to help patients connect to more affordable medications, yet it is unclear if patients are getting all the benefits from these programs - profits may be passed through to hospitals & for-profit pharmacies.

Grassroots Program

Knowledge = Empowerment is an online, classroom style, multi-dimensional learning and engagement experience led by people affected by AiArthritis diseases. Through a range of participation options available - patient-led video library, classrooms (webinars) led by patient teachers/discussion guides, FIELD TRIPS, and elevated experiences for those who want to get more involved in public policy (writing letters to and sharing stories with legislators), we have something for everyone!


As a result of this program, we hope to help patients and their loved ones:

  • Better understand important healthcare issues that may be affecting their access to therapies;
  • Identify if one of these issues are happening to them, then provide tools to address it;
  • Feel confident and empowered to share their stories with people making laws that impact their healthcare.



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