Transparency

Support

We  are grateful for support from the public, whose generous donations enable us to help millions of people around the world who are affected by autoimmune and autoinflammatory diseases with arthritis as a major component.  We also thank the academic and healthcare professional collaborators for helping us achieve change. 


We assure our community that we are free from the influence of our corporate funders.  All work we do is based on direct dialogue with others who, like us, are affected by these diseases.  As a result of those interactions, we identify issues and brainstorm solutions.   At no time have we been or will we be influenced, guided, or scripted by our corporate financial supporters.

Financials

It is our responsibility as a public run charity to inform our supporters exactly, dollar for dollar, how we spend our grants and donations, specifically how those dollars are used to give back to the community. We are proud of the impact we have achieved since our inception in 2011, and look forward to what next year will bring as we continue to ramp up our efforts.  

Additional information about our organization can also be found at www.GuideStar.org, the main resource for investigating charity transparency.

Privacy Policy

We respect your privacy.  The information (the names, email addresses or any other contact information, personal or disease journey data) provided to us voluntarily by our visitors in their communications with us is securely stored and not shared directly with any third party.  We do listen to the patient voice, and then summarize issues, which we share with various stakeholders and collaborators only to advance research, education, and advocacy.  At no time, unless given permission to share an identity to help advance our mission,  are identities shared. 
“As people diagnosed with these diseases, we understand the value of our voices.  We aim to be the bridge between those affected and stakeholders who could benefit from those voices.  All communications with those stakeholders are to advance education, advocacy, and research.  Unless a person want to share their personal story and identity, any information we provide is generalized and identities protected.”
- Co-Founders