Patient-led project aimed to increase detection, referrals, and diagnosis.
The Patient-Identified Problem and Patient-Infused Solution
This organization was founded because patients from all over the world found each other on social media, started talking, and realized it did not matter which AiArthritis disease we had, we all shared similar symptoms and diagnosis journeys. The 'ah-ha' moment was we realized we all shared "auto" (Autoimmune or Autoinflammatory disease) symptoms (fatigue, brain fog, etc.) and classic inflammatory arthritis symptoms (pain that felt like an injury, bone bruise, jumping from location, starting and stopping for no apparent reason, severe stiffness after periods of rest, etc.) We thought, "If we group these diseases together and teach the world what symptoms to look for, then maybe we could expedite earlier detection, referrals, and diagnosis (and then less "Mystery Patients," which is unfortunately common)."
Through talking to thousands of fellow patients, and in conjunction with learning about common disease overlap through our Go With Us! to Conferences program, we realized a potential solution to expediting diagnosis may be as simple as an equation: AUTO + Inflammatory Arthritis = X. And, if not X (one of our diseases), then maybe it's Y or Z. Given the frequency of fibromyalgia as a misdiagnosis or comorbidity, and the new realization of IgG4 Related Disease ("IgG4-RD") being detected in many with our diseases, we chose these two as the OR Y and Z diseases.
Early Detection Awareness Equation. An early detection equation for health practitioners - AUTO (Autoimmune or Autoinflammatory disease) symptoms + Inflammatory Arthritis could be X (AiArthritis diseases) and, if not, maybe it's Y (IgG4), Z (fibromyalgia), or other similar conditions could be the best solution to help both the healthcare community and the public to better identify early disease.
Learn more about this project by listening to or watching Episode 82: AUTO + Inflammatory Arthritis - Diagnosis, Please! & Episode 90: Why Won't They Diagnose Me?
International Foundation for AiArthritis
6605 Nottingham Ave.
St. Louis, MO 63109-2661
Tax ID: 27-1214308
Copyright 2024. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. 501(c) 3 Nonprofit Tax ID: 27-1214308.