AiArthritis logo showing stylized infinite loop symbol in red with black dots, above organization name for International Foundation for Autoimmune & Autoinflammatory Arthritis.

Just Diagnosed with an AiArthritis Disease? Here's What Our Community Wants You to Know

Finding out you have an AiArthritis disease can be scary. You will have lots of questions and worries. But guess what? Many people have been where you are, and they want to help! We asked our community what advice they would give to someone who just found out they have AiArthritis disease. Here's what they said.


Find a Great Doctor


The number one tip from our community is to find a good doctor called a rheumatologist. This is a special doctor who knows all about arthritis. Laura Mae says it's worth traveling to find the right doctor. Another member, Johanna, drives 92 miles just to see her doctor! She says she feels lucky to have found such a good one.


Laura Torchinsky tells us it's super important to find a doctor you trust. You'll see this doctor a lot, so you should feel comfortable asking them any questions - even the ones you think might sound silly!


Learn About Your Condition


Cynthia shared some really smart advice about learning more about AiArthritis. She says you should:


  • Read about your type of arthritis
  • Learn about different treatments
  • Know what signs to watch for
  • Join AiArthritis and other support groups
  • Find groups that focus on your specific type of arthritis


The more you know about your condition, the better you can take care of yourself.


Connect with other patients who understand


Everyone agrees that having support from others is super important. You don't have to deal with this alone! There are lots of people who know exactly what you're going through. They can share tips and tricks that helped them feel better.


What to Remember


Here are the main things our community wants you to know:


  • Take time to find a good doctor, even if they're far away
  • Make sure you trust your doctor
  • Learn everything you can about your condition
  • Join groups where you can meet others with AiArthritis
  • Take your time getting used to everything


Remember that lots of people with AiArthritis live happy, active lives. Yes, some days might be hard, but you'll learn what works best for you. With good doctors, helpful information, and friendly support, you can handle this!



You're joining a big family of strong people who understand what you're going through. We're here to help you every step of the way. You might feel alone right now, but trust us - you're not. There are lots of us here to support you! 


Thanks to our community members Laura Mae, Laura Torchinsky, Joanna Derrick, and Cynthia Hart for your insight.


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