AiArthritis logo showing stylized infinite loop symbol in red with black dots, above organization name for International Foundation for Autoimmune & Autoinflammatory Arthritis.

Awareness

These blog posts are dedicated to raising awareness about AiArthritis Disease, shedding light on its impact and the importance of understanding this condition. By delving into various aspects of the disease, we aim to inform and engage our readers in meaningful discussions surrounding AiArthritis and its effects on individuals and communities.

Shining a Light on the Unseen: Understanding Rare Disease Month

February 8, 2025
Did you know? Collectively, rare diseases affect over 300 million people worldwide. That's nearly the population of the United States!
A pair of palms showing a skin rash with reddish patches characteristic of antisynthetase syndrome

A Guide To Antisynthetase Syndrome

December 27, 2024
Understanding rare autoimmune disorder Antisynthetase Syndrome
A person in a striped shirt holds their wrist, with a red highlighted area indicating joint pain

What Is Palindromic Rheumatism?

December 26, 2024
Understanding rare autoinflammatory disease Palindromic Rheumatism (PR)
Close-up of a human ear showing redness and inflammation of the cartilage, a characteristic of RP

Breaking Down Relapsing Polychondritis (RP)

December 25, 2024
Relapsing Polychondritis: A Rare Autoimmune Disorder Affecting Cartilage
Gloved hand holding test tube labeled 'Undifferentiated Arthritis(UA) - Test' with red cap

What Is Undifferentiated Disease (UD)?

December 23, 2024
Undifferentiated disease refers to conditions where individuals exhibit symptoms resembling those of autoimmune or autoinflammatory diseases, but the symptoms are not specific or severe enough to warrant a definitive diagnosis of one of them.
Baby wearing light blue winter hat and brown scarf, bundled up warmly.

Understanding Familial Cold Autoinflammatory Syndrome (FCAS)

December 11, 2024
Familial Cold Autoinflammatory Syndrome (FCAS), or familial cold urticaria, is a rare genetic disorder triggered by cold exposure. It is the mildest form of cryopyrin-associated periodic syndromes (CAPS), linked to mutations in the NLRP3 gene.
Close-up of baby's belly with red rash, small hands touching the irritated skin.

Understanding Chronic Infantile Neurological, Cutaneous, and Articular Syndrome (CINCA), also known as Neonatal-Onset Multisystem Inflammatory Disease (NOMID)

December 11, 2024
Chronic Infantile Neurological, Cutaneous, and Articular Syndrome (CINCA), also known as Neonatal-Onset Multisystem Inflammatory Disease (NOMID), is a rare and severe autoinflammatory disorder that manifests early in life. This condition is part of a group of disorders known as cryopyrin-associated periodic syndromes (CAPS).

Understanding Muckle-Wells Syndrome (MWS)

December 11, 2024
Muckle-Wells Syndrome (MWS) is a rare genetic disorder that falls under the category of cryopyrin-associated periodic syndromes (CAPS).

Understanding Cryopyrin-Associated Periodic Syndromes (CAPS)

December 3, 2024
Cryopyrin-Associated Periodic Syndromes (CAPS) are a group of rare, autoinflammatory disorders characterized by systemic inflammation due to mutations in the NLRP3 gene.

Celebrating International Day of Persons with Disabilities on December 3rd

November 27, 2024
Observed globally on December 3rd, the International Day of Persons with Disabilities (IDPD) rallies support for the crucial issues surrounding disability inclusion, raises awareness about disability-related challenges, and highlights the advantages of creating an inclusive and accessible society for everyone.

Hyper-IgD Syndrome (HIDS): A Comprehensive Overview

November 26, 2024
Hyper-IgD Syndrome (HIDS), also known as Hyperimmunoglobulin D Syndrome, is a rare, autosomal recessive genetic disorder. It is characterized by recurrent episodes of fever, along with other symptoms such as joint pain, abdominal pain, and swollen lymph nodes.

Familial Mediterranean Fever (FMF): A Comprehensive Overview

November 26, 2024
Familial Mediterranean Fever (FMF): A comprehensive overview of this rare condition.
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Want to submit content to the AiArthritis blog?

Are you living with AiArthritis Disease? We want to hear your voice! We're actively seeking authentic, personal stories from our community members to feature on our blog. Our mission is to amplify patient perspectives and create a space where experiences can inspire and connect others.

  • What We're Looking For

    We welcome submissions on various aspects of living with AiArthritis Disease, including:


    • Your diagnosis journey
    • Insights you wish others understood about AiArthritis
    • Your experience with advocacy
    • Managing symptoms like fatigue, malaise, and unexpected challenges
    • Personal coping strategies and wellness tips
    • Any other AiArthritis Disease-related topics that matter to you

    Writers living with the following AiArthritis Diseases:


    Rheumatoid Arthritis, Psoriatic Arthritis, Lupus, Sjögren’s Disease, Axial Spondyloarthritis, Juvenile Arthritis, Still’s Disease, Crohn’s Disease, Sarcoidosis, Relapsing Polychondritis, Scleroderma, Behcet’s Disease, Palindromic Rheumatism, Antisynthetase Syndrome, Mixed Connective Tissue Disease, Undifferentiated Disease, VEXAS Syndrome, Schnitzler Syndrome, CRMO/CNO, CAPS, FMF, HIDS


  • Submission Guidelines

    Submission Guidelines

    Post Structure:


    • Title: Keep it concise (15 words max)
    • Subtitle: One clear sentence describing your main message
    • Summary: A brief overview (50 words max)
    • Author Bio: Include a paragraph about yourself with relevant social media links
    • Length: 700-1,500 words
    • Social Media Promotion: How would you promote this on social media? Please provide one short paragraph about your post, your social media handles for tagging and any hashtags you wish to include. 

    Visual Elements:


    Include 1-3 high-quality images with your submission, or note if you'd like our team to select appropriate visuals from our photo bank!


  • How To Submit

    How to Submit


    Please send your work to eileen@aiarthritis.org


    Got questions? We're here to help! Reach out to us at the same email address, and we'll guide you through the process.


    Join us in building a stronger AiArthritis community through shared experiences and stories that matter. We can’t wait to highlight your story!


  • Patient Perspective Examples

    Here are some examples from our community members!


    A Matter of Life and Breath: Living with Interstitial Lung Disease - Denae Cedar, RDN 


    Autoimmune Community Summit: Day One Summary - By Brittany Murray



    Rheumatoid Arthritis Treatments Gone Wrong - By Jennifer Weaver


    From Diagnosis to Advocacy: Becky's Journey with Sjögren’s - By Rebcca Hosey



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