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April: Sjögren's Disease Awareness Month

April is Sjögren's Disease Awareness Month, an annual initiative dedicated to raising awareness about Sjögren's Disease—a chronic autoimmune disease that affects millions worldwide. This observance serves as an opportunity to educate the public, promote research efforts, and offer support to those living with the condition. The Sjögren's Foundation plays a key role in these efforts, providing valuable resources for patients and healthcare professionals alike.


Origins of Sjögren's Disease

Sjögren's Disease is named after Dr. Henrik Sjögren, a Swedish ophthalmologist who, in 1933, conducted groundbreaking research to describe the condition. His work led to the recognition of Sjögren's as a distinct autoimmune disease, characterized by hallmark symptoms like dry eyes and dry mouth. Over time, understanding of the disease has evolved, with the term "Sjögren's disease" now reflecting its systemic nature. Beyond dryness, it can lead to serious complications, including organ involvement, emphasizing its complexity and impact on overall health.


History of Sjögren's Awareness Month



Sjögren's Awareness Month was established in 1998 when New York Congresswoman Louise Slaughter entered it into the Congressional Record. Since then, the Sjögren's Foundation has worked diligently each April to spread awareness. Their annual #ThisIsSjögrens campaign highlights patient stories and showcases the diverse experiences of those affected by the disease, helping to foster greater empathy and understanding.

Key Facts About Sjögren's Disease

  • Gender Prevalence: Approximately 90% of those diagnosed with Sjögren's are women, suggesting hormonal factors may play a role in its development.
  • Systemic Nature: Once seen as just a collection of symptoms, Sjögren's is now understood as a systemic autoimmune disease with far-reaching effects on the body.


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What is Sjögren's Disease?

Sjögren’s disease primarily affects the body’s moisture-producing glands, leading to dryness in areas like the eyes, mouth, and skin. However, it can also impact major organs such as the lungs and kidneys, adding layers of complexity to the condition.


Symptoms of Sjögren's Disease


  • The symptoms of Sjögren's vary from person to person and may include:
  • Persistent dryness (eyes, mouth, nose, skin).
  • Swollen, painful salivary glands, particularly near the jaw.
  • Mouth sores and oral yeast infections.
  • Persistent dry cough or bronchitis.
  • Headaches and difficulty swallowing.
  • Lung issues like interstitial lung disease or pneumonia.
  • Peripheral neuropathy or Raynaud’s phenomenon (fingers/toes turning white or blue in cold or stress).


These symptoms can significantly affect quality of life. Early diagnosis and treatment are critical for managing the disease and preventing complications.

Learn more about Sjögren's Disease

Are you or a loved one navigating life with AiArthritis diseases? The International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) brings you this comprehensive guide to better understand these conditions and their symptoms. Learn about over 20 AiArthritis diseases, discover the importance of symptom tracking, and find support tailored for you. 


Learn more about Sjögren's Disease

How to Get Involved

Want to make a difference during Sjögren's Awareness Month? Here’s how:


  • Spread Awareness: Use hashtags like #SjögrensAwarenessMonth and #ThisIsSjögrens on social media to share stories and educational content.
  • Participate in Events: Attend virtual or in-person events like webinars, walk-a-thons, and fundraisers organized by the Sjögren's Foundation.
  • Wear Purple: Purple is the color of Sjögren's awareness. Show your support by wearing purple throughout April.
  • Donate: Consider contributing to organizations like the Sjögren's Foundation to fund research and patient resources.
  • Advocate: Contact policymakers to advocate for better healthcare access and increased research funding for Sjögren's Disease.


Moving Forward


Sjögren's Awareness Month is an opportunity to bring attention to this complex autoimmune disease, promote research, and build a supportive community for those affected. By sharing knowledge and showing solidarity, we can drive progress toward better outcomes for patients. This April, let’s work together to raise awareness and make a lasting impact in the lives of people living with Sjögren's disease.


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