Learned Experiences - Let the Evolution Continue!
AiArthritis Voices 360 Full Episode 59
Air Date: March 21, 2021
This week join your patient host Tiffany Westrich-Robertson, CEO of International Foundation for
AiArthritis, as she discusses the mission and future projects of The International Foundation for
Autoimmune and Autoinflammatory
Arthritis and the
AiArthritis Voices 360 Talk Show.
The mission of AiArthritis is to elevate and center the patient voice in global conversations with all stakeholders about solving problems facing the autoimmune and autoinflammatory arthritis community. We do this by engaging in a 6-step process (as outlined in Episode 27: The Method To Our Madness) for bringing pressing issues to the table for conversations to create solutions to improve the lives of the 450 million people worldwide living with AiArthritis diseases.
Our organization is constantly evolving to meet those changing needs. As we look to a future where people will be able to interact in person more without the fear of COVID-19, we are excited to transition to a model for the show that will allow us to embrace our original vision of a “touring” talkshow. To prepare for this, we are changing the airing schedule of the show and diversifying our media platforms so that conversations building on core issues raised on the talkshow may be addressed through conversations on other platforms like social media, Youtube, webinars, and in our AiArthritis Voices online forum. We can’t wait to see YOU at the table soon for one of these chats.
LISTEN TO THE EPISODE THEN BE SURE TO TAKE A SEAT AT THE TABLE BY JOINING THE CONVERSATION!
(Scroll down the page to learn how!)
Pull up your seat at the table
Now it's YOUR TURN to join the conversation!
What do you think about this episode?
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!
Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!
The
AiArthritis Voices Program
Our AiArthritis Voices 360 Talk Show is just a piece of larger program - the AiArthritis Voices Program.
AiArthritis Voices is our program where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives.
If you want to get more involved, and see more of the opportunities we have for you (and all stakeholders) please check out the
AiArthritis Voices Program. Unite with others around the world to talk, learn, and connect.
Patient Voices and All Other Stakeholders - Join our
AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!
If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).
Be sure to check out our top-rated show on Feedspot!
Show Notes:
00:52 - Tiffany welcomes listeners.
01:13 - Today’s episode is about learned experiences and the next evolution of the AiArthritis Voices 360 talkshow.
05:56 - In March of 2020, Tiffany contracted COVID-19, but nobody believed her at the time.
07:52 - Tiffany received her first dose of the COVID-19 vaccine yesterday.
08:23 - AiArthritis has worked diligently to bring constantly evolving information about COVID-19 to the AiArthritis patient community and to involve other stakeholders in these conversations.
11:00 - The organization follows a 6-step process to address issues. These are discussed in detail in Episode 27: The Method to Our Madness.
12:06 - AiArthritis Voices 360 will air 1 core episode the first Sunday of each month, beginning in April 2021.
13:43 - There will be unlimited breakout conversations on a variety of platforms that support those core issues.
14:59 - We are looking forward to an upcoming episode on value assessments used in pricing AiArthritis medications.
15:52 - We also have an episode coming up about health equity and diversity, as well as continued conversations about autoimmune and autoinflammatory arthritis vs other forms of arthritis.
16:25 - To submit a topic for conversation, go to aiarthrits.org/talkshow and click on the button that says “submit your topic.”
17:15 - Sign up to stay informed on all our ongoing conversations by receiving our e-newsletter at aiarthritis.org.
17:45 - Like us on social media @IFAiArthritis on all platforms to stay informed and involved as well.
18:34 - Tiffany thanks listeners.
Your Co-Hosts & Guests: Who is at the table this episode?
Tiffany Westrich-Robertson
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. For the last several years, she has continued her education in research, including becoming a professional focus group moderator, and translated this experience at our organization to develop award-winning, innovative projects that are taking patient engagement to next levels.
Tiffany has served on several advisory boards, including those to advance patient voices in policy, clinical trials, and precision medicine. In addition to reviewing grants at PCORI and for the Department of Defense, she was the sole patient grant reviewer for the National Institute of Arthritis and Musculoskeletal and Skin diseases from 2015-2018. She currently participates as a Patient Research Partner for OMERACT (Outcome Measures in Rheumatology), co-leads our organizations' international effort to advance patient voices in rheumatology research (the ACTion Council) and has dedicated her professional career to developing other patients to utilize their voices to impact the future of millions.
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