Special Series: Reporting from the American College of Rheumatology (ACR) Scientific Meeting 2020
AiArthritis Voices 360 Full Episode 58
Air Date: March 7, 2021
This week join your patient co-host Deb Constien as she reports from the 2020 American College of Rheumatology Conference on Dietary Modifications and the Microbiome as potential future therapeutic options for the treatment of AiArthritis diseases. Deb is a medically retired registered dietitian who has been living with Rheumatoid Arthritis for 39 years. She attended two fascinating sessions on these topics at the 2020 ACR Conference and gives a State of the Research presentation for all of us who weren’t able to attend the sessions ourselves.
AiArthritis believes that the future of Rheumatology lies in precision medicine and shared-decision-making where a patient’s genetics, lifestyle, environment, and medical history all play a role in determining the best course of treatment to be decided upon by the patient and their Rheumatologist working together. This vision for the future of healthcare would no longer rely on one-size-fits-all approaches to treating disease where patients are subjected to a series of failed medications (ie step therapy) until they stumble on one that happens to work well for their situation.
Researchers believe they are very close to identifying specific biomarkers that can determine a patient’s unique dietary needs that would help - in concert with pharmaceutical therapies - to reduce inflammation levels in the body. Deb walks us through the new research into dietary modifications and the microbiome and their respective roles in managing inflammation levels in patients suffering with AiArthritis diseases, as well as how these might be utilized in the future of precision medicine.
LISTEN TO THE EPISODE THEN BE SURE TO TAKE A SEAT AT THE TABLE BY JOINING THE CONVERSATION!
(Scroll down the page to learn how!)
Now it's YOUR TURN to join the conversation!
We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community. Better yet, through these conversations we can start working and developing solutions.
We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!
Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)
Our AiArthritis Voices 360 Talk Show is just a piece of larger program - the AiArthritis Voices Program.
AiArthritis Voices is our program where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives.
If you want to get more involved, and see more of the opportunities we have for you (and all stakeholders) please check out the
AiArthritis Voices Program. Unite with others around the world to talk, learn, and connect.
Patient Voices and All Other Stakeholders - Join our
AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!
If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).
Be sure to check out our top-rated show on
Feedspot!
Show Notes:
Episode 58:
Diet, Research, & AiArthritis - an ACR Special Presentation
00:52 - Deb welcomes listeners.
01:09 - Deb is a patient living with RA and a recurring Voices 360 co-host, as well as a retired Registered Dietitian
01:30 - This episode is based on two 2020 American College of Rheumatology Conference session titled: Modulation of RA Activity through Dietary Restoration of the Microbiome and Trials of Diet on Rheumatoid Arthritis
02:10 - The microbiome is a new frontier in precision medicine for the treatment of AiArthritis Diseases.
03:59 - Dietary interventions have not yet been established as a complementary treatment for RA like it has been for inflammatory bowel disease, but researchers believe they are close to finding a connection.
04:24 - The microbiome is a promising new way to monitor health and use it as a high dimensional biomarker to improve patient outcomes.
05:35 - Bacteria in your gut can impact inflammation.
06:23 - The Inflammatory Arthritis Microbiome Consortium (IAMC) collected diagnostics from stool and blood to examine bacteria and how inflammation may be connected to each different strain of bacteria found in the intestines.
07:31 - The IAMC is also studying how genetics may impact inflammatory arthritis.
08:04 - One study looked at the impact of a diet high in anti-inflammatory foods on RA patients.e
09:31 - The anti-inflammatory diet excluded soy, gluten, and refined sugar, but included some dairy to make it more palatable to the patients.
11:19 - Some patients did not improve at all with the highly restrictive diet, but some had improvements in pain and fatigue.
12:51 - Deb has done a 30 day Elimination Diet to try and identify inflammatory triggers, but none of the common triggers impacted her pain at all.
13:16 - Deb believes that a newly diagnosed patient might have better results than someone like her who has had RA for decades.
15:11 - Pain, fatigue, and general sense of wellness improved for the patients that had measurable results from the diet changes.
15:58 - There was discussion in the session of possibly pre-treating patients with antibiotics or cleanses to prepare patients for starting an anti-inflammatory diet as a potential next step in the research.
19:13 - To discuss this topic in more depth, visit us @IFAiArthritis on all social media platforms, email us at podcast@aiarthritis.org, or sign up to join us inside our new project community AiArthritis Voices @ aiarthritis.org/aiarthritisvoices
20:26 - Follow us anywhere you listen to podcasts and give us a 5-Star Rating
20:38 - To support the show, consider making a donation on our website at aiarthritis.org
Your Co-Hosts & Guests: Who is at the table this episode?
Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. For the last several years, she has continued her education in research, including becoming a professional focus group moderator, and translated this experience at our organization to develop award-winning, innovative projects that are taking patient engagement to next levels.
Tiffany has served on several advisory boards, including those to advance patient voices in policy, clinical trials, and precision medicine. In addition to reviewing grants at PCORI and for the Department of Defense, she was the sole patient grant reviewer for the National Institute of Arthritis and Musculoskeletal and Skin diseases from 2015-2018. She currently participates as a Patient Research Partner for OMERACT (Outcome Measures in Rheumatology), co-leads our organizations' international effort to advance patient voices in rheumatology research (the ACTion Council) and has dedicated her professional career to developing other patients to utilize their voices to impact the future of millions.
Click here to here to listen to mini-episode 9 where Tiffany talks about precision vs. personalized medicine and our project called Preparing Patients for Precision Medicine to help educate patients on the terminology surrounding precision medicine.
Click here to listen to episode 50 where Tiffany, Deb, and Patrice take us backstage to the ACR to talk about one of the non-pharmacologic sessions involving the affects of positive thinking.
Click here to watch all our Go to EULAR videos on our Youtube channel
Love the show? Help us make sure we stay on the air by making a donation.
Your contribution helps us continue the work we do every day to improve the lives of millions worldwide.
International Foundation for AiArthritis
6605 Nottingham Ave.
St. Louis, MO 63109-2661
Tax ID: 27-1214308
Copyright 2024. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. 501(c) 3 Nonprofit Tax ID: 27-1214308.