AiArthritis logo showing stylized infinite loop symbol in red with black dots, above organization name for International Foundation for Autoimmune & Autoinflammatory Arthritis.

Co-Founders Introduce the AUTO Ball Online

Special AUTO Ball Series

AiArthritis Voices 360 Show Episode #28

AUTO Ball Special Series Episode #1

Air Date: May 24, 2020

Between May 16 - 20th, we took our AiArthritis Voices 360 Talk Show LIVE, to help teach more people who we are, what we do, and how we impact the lives of those affected by AiArthritis Diseases while honoring the 450 million people worldwide living with our diseases. It also served as the starting line for our 2020 fundraising efforts. 


This inaugural gala, the AUTO Ball, was originally scheduled to take place in St. Louis, MO, our headquarters, at the National Museum of Transportation - Earl C. Lindberg Auto Museum. Due to COVID-19, the physical event was canceled. However, since this talk show was scheduled as part of the primary method to teach a larger community about our work, we hosted a series of 10 LIVE shows. This first episode re-introduces our organization to the world, from the perspectives of the co-founders, outlines the value we bring to the community and how YOU can get more involved. 

Featuring AiArthritis CEO, Co-Founder, and Host of the AUTO Ball - Tiffany Westrich-Robertson - along with recurring AiArthritis Voices 360 Co-Host and Ai Arthritis Co-Founder - Kelly Conway - and 

Co-Founder Tami Caskey Brown.


This episode was originally streamed LIVE on the AiArthritis Facebook page. 

 

  • To listen the podcast audio version, click on the arrow below. 
  • To watch the the live video recording and meet the Co-Hosts "face to face", click on the WATCH NOW button. 

 

LISTEN TO THE EPISODE THEN BE SURE TO TAKE A SEAT AT THE TABLE BY JOINING THE CONVERSATION! 
(See table icon below)

You can find, follow, and listen on Podbean, Spotify, Apple Podcast, or where ever you do podcasts. Please follow, rate, and subscribe to the show, then share it with someone. Be sure to check out our top-rated show on Feedspot!

Prefer to watch the episode instead of listen to it?  
Then pull up a seat and watch the episode on our Youtube page: 

WATCH NOW: Live Episode from our Youtube Page

Pull up your seat at the table

Now it's YOUR TURN to join the conversation!

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What do you think about this episode?

We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community.  Better yet, through these conversations we can start working and developing solutions.


We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!


Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)

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Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!

Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!

The AiArthritis Voices Program

Our AiArthritis Voices 360 Talk Show is just a piece of larger program - the AiArthritis Voices Program.


AiArthritis Voices is our program where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives.


If you want to get more involved, and see more of the opportunities we have for you (and all stakeholders) please check out the AiArthritis Voices Program. Unite with others around the world to talk, learn, and connect. 

Join AiArthritis Voices


Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!


If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.


JOIN TODAY! 

 

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).

Be sure to check out our top-rated show on  Feedspot!

Your Co-Hosts & Guests: Who is at the table this episode?

Show Co-Host: Tiffany Westrich-Robertson

Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues. For the last several years, she has continued her education in research, including becoming a professional focus group moderator, and translated this experience at our organization to develop award-winning, innovative projects that are taking patient engagement to next levels. 

Tiffany has served on several advisory boards, including those to advance patient voices in policy, clinical trials, and precision medicine. In addition to reviewing grants at PCORI and for the Department of Defense, she was the sole patient grant reviewer for the National Institute of Arthritis and Musculoskeletal and Skin diseases from 2015-2018. She currently participates as a Patient Research Partner for OMERACT (Outcome Measures in Rheumatology), co-leads our organizations' international effort to advance patient voices in rheumatology research (the ACTion Council) and has dedicated her professional career to developing other patients to utilize their voices to impact the future of millions.

Show Co-Host: Kelly Conway
Kelly is a speech-language pathologist, author/blogger, and a patient advocate. She has been living with autoimmune arthritis since age 14 but wasn’t formally diagnosed until age 32. That diagnosis has changed more than 5 times over the past 18 years. Through social media, she connected with fellow patients and cofounded the International Foundation for Autoimmune and Autoinflammatory arthritis. She has represented her state of Pennsylvania on Capitol Hill for the American College of Rheumatology multiples times, and speaks of the patient perspective at medical/pharmaceutical conferences. Kelly believes in the power of the patient voice and sharing our stories to raise awareness, education, and advocacy.
 
Follow Kelly: Check out Kelly’s blog is “As My Joints Turn: My Autoimmune Soap Opera".  Visit her facebook page and twitter below.
Guest Co-Host: Tami Caskey-Brown
Tami is an autoimmune arthritis disease patient who has Rheumatoid Arthritis, Sjogren's Syndrome, and Lupus. She worked in the law enforcement and the legal profession and in the capacity of an executive assistant/administrator and paralegal for over 25 years prior to early retirement due to permanent disability from her illness. With those skills in hand, and a great passion to help spread awareness and help others suffering from these diseases, she helped co-found International Foundation for Autoimmune & Autoinflammatory Arthritis in 2011. 

She has experience on various other patient-focused panels such as the NIAMS Coalition and National Coalition of Autoimmune Patient Groups (NCAPG) and the American College of Rheumatology's legislative advocacy on Capitol Hill. In addition, she was a patient reviewer, mentor, and ambassador for the Patient-Centered Outcomes Research Institute (PCORI).  Tami has retired, but is still our #1 fan!

Relevant Episodes & Projects

Mystery Patient

Listen to the first talk show episode where Tiffany, and co-host, Kelly, as they introduce the mission at the International Foundation for Autoimmune and Autoinflammatory Arthritis (AiArthritis) and talk about their experience being "mystery patients"

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About our Organization

Learn more about our Mission, Goals, Vision, and processes.

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What is AiArthritis

Click here to learn more our diseases

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