Social support research and the importance of 

being heard

Mini Episode 13

Rheumy Rounds™ Episode 1 - break out segment

Air Date: February 12, 2020

Welcome to this week’s episode of AiArthritis Voices 360: At The Table. This week listen to an excerpt from Part One of our pilot episode of Rheumy Rounds™, a break out series that brings rheumatology professionals & persons affected by AiArthritis diseases to the same table, as equals, to discuss important community topics that, if solved, would improve communication and positively impact outcomes.

This mini-episode captures a break out discussion between Kelly and Jerik about the research Jerik and his team have been working on regarding social support and the need for people with AiArthritis diseases to find others, like us, who understand our journey.

LISTEN TO THE EPISODE THEN BE SURE TO TAKE A SEAT AT THE TABLE BY JOINING THE CONVERSATION! 

(Scroll down the page to learn how!)

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Now it's YOUR TURN to join the conversation!

What do you think about this episode?

We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community.  Better yet, through these conversations we can start working and developing solutions.


We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!


Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)

Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!

Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!

The AiArthritis Voices Program

Our AiArthritis Voices 360 Talk Show is just a piece of larger program - the AiArthritis Voices Program.


AiArthritis Voices is our program where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives.


If you want to get more involved, and see more of the opportunities we have for you (and all stakeholders) please check out the AiArthritis Voices Program. Unite with others around the world to talk, learn, and connect. 

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Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!


If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives.By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.



JOIN TODAY! 

 

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).



Be sure to check out our top-rated show on  Feedspot!



Your Co-Hosts & Guests: Who is at the table this episode?

Jerik Leung 

Jerik Leung is a graduate student in the Master of Public Health Program at Saint Louis University, College for Public Health and Social Justice (SLU CPHSJ) focusing in behavioral science and health education. He has been involved with lupus-related health research for the past four years, beginning during his time as an undergraduate student at Washington University, where he met Dr. Alfred Kim and conducted a senior thesis project in medical anthropology seeking to understand the primary obstacles of living with lupus from the patient perspective. This work and the necessity of the patient voice in guiding research and treatment priorities has formed the basis of Jerik’s current work with Dr. Kim and Dr. Elizabeth Baker, Professor of Behavioral Science and Health Education at SLU CPHSJ, on understanding and developing interventions related to social support and impact on quality of life among those living with lupus using a community-based approach. After graduate school, Jerik intends to continue on a career path in health sciences research with a specific focus in autoimmune diseases.

Kelly Conway

Kelly is co-founder of our organization, a speech-language pathologist, author/blogger, and a patient advocate. She has been living with autoimmune arthritis since age 14 but wasn’t formally diagnosed until age 32. That diagnosis has changed more than 5 times over the past 18 years. She has represented her state of Pennsylvania on Capitol Hill for the American College of Rheumatology multiples times, and speaks of the patient perspective at medical/pharmaceutical conferences. Kelly believes in the power of the patient voice and sharing our stories to raise awareness, education, and advocacy.
 
Kelly’s blog is “As My Joints Turn: My Autoimmune Soap Opera” at www.asmyjointsturn.com. She has also authored a book about her chronically ill dog, called, “Making Lemonade with Georgia Grace.” Visit the facebook page about Georgia at https://www.facebook.com/georgiathecavalier.  

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