Still’s Disease is a rare, multi-systemic (whole body) autoinflammatory condition that can vary from person to person. In some individuals, Still’s Disease develops suddenly, disappears almost as quickly, and may not return for many years, if ever. In others, it is a chronic condition. Symptoms and progression vary per individual. Some patients will have many of these symptoms, some only a few.  Over the last several years, our organization has conducted research into this condition, based strongly on patient-reported disease experiences. Not only did we gain more knowledge about the complexity of the disease, we also learned of the need to educate healthcare workers who do not understand the varied presentation and potential complications.

Since 2019, we have been working on a campaign to help families and peers of patients, the public, and healthcare workers better understand Still's Disease. This #MyStills campaign, which will launch on Still's Disease Awareness Day (September 7th, 2020), will help spread global awareness about the disease, while providing patients with the tools they need to help others understand. In addition to a global media campaign - including a video featuring 5 patients, a coordinating web page filled with more stories, and social media posts, we will also be launching our much anticipated Patient-Reported Still's Disease brochures. Brochures will be available for download starting on September 7th.

This campaign will run through Still's Disease Awareness Day 2021 - that's right ... a whole YEAR! So make sure to get involved today!

About the Dragon: This symbol was selected over a decade ago by a community of persons affected by Still’s Disease because of “fire-breathing” high fevers that can come and go, reddish rashes, and the fight to slay the Dragon into remission. This image is a recreation of the original logo and dragon design, as created by the original International Still's Disease Foundation (ISDF) prior to dissolving in 2017. They granted our organization permission for use, so we are proudly incorporating it into our #MyStills campaign to honor their legacy as we continue helping to slay the dragon in the future.