By Jackie Naylor

Age 72 for a long time I'd been getting a rash which disappeared and reappeared daily and I gradually lost the use of my legs. I collapsed at a hospital consultant appointment and was admitted into ICU with septic shock then I was moved onto a ward where I was diagnosed with the very rare autoimmune Adult Onset Stills Disease. I had lost the use of both my arms and legs, was covered in sores, lost half my hair, had blood transfusion, nebulizer and daily IVs and it took a while for the doctors to stabilize me with a multitude of medications.


I contracted Covid in the hospital and was put in an isolation room for 10 days which was excruciating.


I was finally admitted to a Community Hospital where through rehab I have learned to walk again. 


I was in hospital for 14 weeks and its taken the last year to get anywhere near normality having conquered trigger fingers on both hands. I still have painful knees and stiff fingers, low kidney function, AF and have daily injections of Kineret. 


But I can now sew, play the guitar and walk unaided. I still get very fatigued but can't praise the NHS enough for the amazing job in my successful rehabilitation as I'm now in remission 


The first photo is me a month after discharge from hospital


The second and third photos are me today


Kind regards


Jackie Naylor


A person sits at a desk, leaning forward with one hand to their head and the other holding their lower back in pain.
April 4, 2026
Describing pain can improve patient provider communication. Discover tips on how to describe pain in AiArthritis diseases
A calculator and stethoscope rest on a background of an EKG graph, with a small red heart figure placed near the tubes.
April 4, 2026
Heart health doesn’t always get the attention it deserves in AiArthritis disease care. Learn why this needs to change.
A person in dark pajamas lies on the floor with a laptop, surrounded by crumpled tissues, looking distressed.
April 4, 2026
Learn about the latest information about brain fog and sleep issues in AiArthritis diseases
A person holds their foot, with the sole highlighted in red to represent pain or inflammation.
March 25, 2026
Stay up to date on the latest European Alliance of Associations for Rheumatology (EULAR) insights on enthesitis.
More Posts