AiArthritis logo showing stylized infinite loop symbol in red with black dots, above organization name for International Foundation for Autoimmune & Autoinflammatory Arthritis.

Knowledge = Empowerment

A virtual, patient-led, ‘innovative classroom’ style approach that will increase the number of patients who understand legislative issues that impact their access to treatments and connect them to opportunities to have a voice to impact change.

The patient-identified problems:

Officially sign up for the 'classroom' so you can get notified (by real patients leading this project) when new learning materials & experiences are available!

SIGN UP TODAY!

Our Patient-Infused Solution

Through peer-led education, guidance, and mentorship, we will help others, like us, affected by AiArthritis diseases feel more confident they understand and identify issues that can block their access to treatments and provide them with tools to use their stories to help us change it.

Understand

Empower

Change

Knowledge=Empowerment Classrooms

There are two levels to our classrooms:


  • Level One. Find patient-led videos, a glossary of healthcare terms, sign up for webinar classes and join us for 'field trips'. Resources and opportunities range from beginner to advanced, so whether you are new to this or been participating in healthcare advocacy for years, there's something for everyone!
  • Level Two. Participate in story sharing to legislators, write letters or give testimony to influence change, submit public comments to groups like the Food & Drug Administration (FDA) and European Medicines Agency (EMA), participate in private webinars with our staff, and more. Patient-led training and mentorship provided.


Go to the Classroom

Topics Covered in 2023*

Patient/Peer-led education, guidance, and mentorship online through easy to understand videos, webinars, and discussion groups.

Step Therapy

Forced trial and failure of other treatments before health plan will let you access what the doctor prescribed.

Accumulator

Manufacture copay coupons will not count and the patient is left paying full price mid-year.

Value Assessments

Measurements that compare the cost of a drug to perceived value of its benefit. Designed for general populations.

Precision Medicine - Innovation - Biomarkers

Access to new treatments is necessary for disease groups, like ours, where subgroup responses vary from larger disease group.

* One topic is USA specific (Accumulator), but the other three are access issues that can happen in different forms all over the world. Also, those patients and supporters who join this program will gain access to a private online forum where you can talk about all kinds of issues related to your access to therapy (pharma and non-pharma). As we are led by patients, we will be part of the conversation, too - and from those conversations we can find more issues and try to help with those also.

Get Involved!

One of the most powerful tools for changing legislation is to hear about issues that get in the way of your access to healthcare.  Whether you want the opportunity to speak to legislators or just want to share your story with us and let our representatives get the stories to the right people, your voice matters! SIGN UP TODAY!

Project Collaborators

The following groups have donated resources to our Education = Empowerment library. Some materials are incorporated into the learning activities, while others are added to a recommended reading list. Check back for more collaborators joining regularly! If you have great public policy resources for us to share with patients, please contact tiffany@aiarthritis and put K = E Project Resources in the Subject Line.

Fashion Magazine

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Blurred Lines

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City skyline

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Birthday Sparks

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Thank you to our Sponsors for making this program possible!


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