HOSTS: Persons Diagnosed with AiArthritis Diseases
We don't represent the patient voice, we are the patient voice. Everything our organization does as a nonprofit is centered around the patient voice, including every full episode and mini "At the Table" call-to-action segments. Our show aims to ensure the patient stakeholder always has a lead role in the conversation.
Those with lived experience always have a leadership role. Our mission is to help others, like us, affected by autoimmune arthritis and autoinflammatory arthritis diseases (AiArthritis diseases) have a voice - alongside other stakeholders as equals - so, TOGETHER, we can solve problems that impact education (and awareness), advocacy (public policy), and research. By enlisting the help of a dozen patient and care partner show hosts from around the world - including our own CEO and Senior Programs & Communication Manager, who both live with our diseases - you can ensure there is always a person with lived experience leading the conversation.
Leila is the Health Education Manager here at AiArthritis. She was diagnosed with lupus in 2008 and Sjögren's disease in 2023. United States
Meet our Co-Hosts!
All co-hosts must be directly affected by AiArthritis diseases.
Full bios are included on the episode page have co-hosted.
Co-Founder, person diagnosed with various AiArthritis diseases
Kelly’s blog is “As my joints turn: my autoimmune soap opera.” She has also authored a book about her chronically ill dog, called, “Making Lemonade with Georgia Grace.” United States.
Episode: Pilot - About IFAA & the Mystery Patient, Pets for Chronic Illness, COVID-19 series
Person diagnosed with Rheumatoid Arthritis, dedicated volunteer Representative of our organization and an IPain Patient Partner (International Pain Foundation). Blog: United Advocacy Australia-United We Stand Hand to Hand. Australia.
Future Episode: Volunteering - How your voice can make a difference
Deb has been living with Rheumatoid Arthritis for three decades, a super-volunteer for our organization & other groups, and a dietician by trade. United States.
;Episodes: Typical versus Atypical disease; "At the Table" mini-sode: "What if I can't walk?"; You can change the world with your knee
Person diagnosed with Ankylosing Spondylitis. disabled activist, writer, and speaker. United States.
Future Episode: Importance of correct diagnosis, navigating the journey to diagnosis (and post-diagnosis)., Internalized Ableism
Juana is a Children's Social Worker for for the Department of Children and Family Services and is diagnosed with both Systemic Lupus Erythematosus & Rheumatoid Arthritis. Co-founder of Looms for Lupus. United States.
Episode: Minority Inclusion in Clinical Trials
Estela is the President and co-founder of Looms for Lupus, supporting her sister Juanta who is diagnosed with Rheumatoid Arthritis and Systemic Lupus Erythematosus. United States.
Episode:co-hosting with Juanta, Minority Inclusion in Clinical Trials
Volunteer with AiArthritis (and other organizations), person living with Undifferentiated Disease
Kerry is a writer and patient advocate living with fibromyalgia, rheumatoid arthritis, sarcoidosis, Sjögren's syndrome, and small fiber neuropathy/dysautonomia (to name a few). As these conditions took their toll and she became less physically able, Kerry became empowered to use her voice to advocate for herself and for patients like her. She is currently working on "Kaleidoscope," a collection of rare disease stories.
http://bit.ly/floatlikeabuttahfly
Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador, among others. When not advocating she is writing about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or can be found being a mom to her son Jacob. https://chroniceileen.com/
Tiffany is the CEO and original founder of AiArthritis, and a person living with non-radiographic axial spondyloarthritis.
Bridget has multiple autoimmune diseases and is Co-Founder of Canna-Patient Resource Connection. United States.
Future Episode: CBD Oil & Medical Marijuana Education
Danielle was diagnosed with Rheumatoid Arthritis and Primary Biliary Cholangitis after years of unproductive medical investigation. United States
Episodes Discrimination in the Workplace, COVID-19 series.
NOTE: Co-hosts may not be affiliated with our organization in any way. Some are volunteers for us, some are not. But they are all our friends. It is not required to volunteer for our organization to be a co-host.
Production & Marketing Manager
From initial interviews with co-hosts and guests to operating procedures and show notes, Christina has helped us develop this talk show from start to finish.
Bio coming soon!
Producer and ... can you guess? Yes - audio engineer!
Ryan's passion for music - which includes a long time history of mixing, mastering, and composing - is equal to his passion for helping our organization make this talk show the best it can be.
International Foundation for AiArthritis
6605 Nottingham Ave.
St. Louis, MO 63109-2661
Tax ID: 27-1214308
Copyright 2024. All rights reserved. Information on this site is intended for informational purposes only Our foundation does not engage in the practice of medicine. Please consult a physician to obtain personal healthcare and treatment options. 501(c) 3 Nonprofit Tax ID: 27-1214308.