COVID-19 & AiArthritis

 AiArthritis Voices 360 Episode #23

Air Date: April 12, 2020

Welcome to AiArthritis Voices 360! This week join one of your International Foundation for AiArthritis 2020 recurring co-hosts, Danielle Dass, and guest patient co-host, Kristen Ray from Spondylitis Association of America (SAA), as they discuss all things masks and COVID-19. Kristen is also in the medical field.


What sorts of masks do healthcare providers need to keep themselves and their patients safe? What happens if hospitals run out of masks? Should people be wearing a mask when they leave their home during social distancing? Do cloth masks offer protection from the virus? Tune in for the answers to these questions and more as we seek to help you navigate this pandemic with our ongoing COVID-19 series. 


There is also a related 10 minute mini-sode with Danielle and Kristen on gloves. Check it out.


LISTEN TO THE EPISODE THEN BE SURE TO TAKE A SEAT AT THE TABLE BY JOINING THE CONVERSATION! 
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What do you think about this episode?

We want to know what you think! By continuing the conversation with your opinions and perspectives - we all get a better understanding of the problems facing our community.  Better yet, through these conversations we can start working and developing solutions.


We mean it when say 360. Not only do we want your input anytime and anywhere, but we also are eager to see where the conversation will take us. So please, "pull up a seat at the table" and let's start talking!


Email us at podcast@aiarthritis.org, message us on social media (find us by searching for @IFAiArthritis)

Continue the conversation in our own AiArthritis Voices 360 Talk Show Group!

Pull up a seat and join the conversation on the topic from today and past episodes. You may even get an opportunity to talk directly with the co-hosts and any episode guests!

The AiArthritis Voices Program

Our AiArthritis Voices 360 Talk Show is just a piece of larger program - the AiArthritis Voices Program.


AiArthritis Voices is our program where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives.


If you want to get more involved, and see more of the opportunities we have for you (and all stakeholders) please check out the AiArthritis Voices Program. Unite with others around the world to talk, learn, and connect. 

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Show Notes: Episode 23 - COVID-19 & AiArthritis


00:52 - Danielle welcomes listeners and patient co-host Kristen to the show

01:38 - Kristen introduces herself

02:12 - Kristen is a patient living with ankylosing spondylitis 

03:58 - Kristen is an ophthalmology nurse 

04:11 - COVID-19 can be spread by touching your eyes, nose, or mouth

04:38 - Today’s topic will deal with masks and whether wearing a mask can help protect you from contracting COVID-19

04:57 - Neither AiArthritis nor the Spondylitis Association of America will be issuing an official recommendation on whether or not patients should wear masks. The episode will provide reliable information that listeners can use to make their own decision regarding their own personal safety

06:27 - PPE refers to protective clothing like helmets, goggles, gloves, masks, etc that are designed to protect healthcare providers from infection or injury

08:09 - Everything has changed in terms of how HCPs see patients and use PPE

09:06 - Kristen’s office is only seeing emergency patients

09:10 - The amount of PPE gear needed to see patients has dramatically increased even though the patient load has been restricted to just emergencies 

11:59 - Healthcare provider needs for PPE have increased, resulting in a global shortage of available gear

12:49 - Smaller hospitals in the US may not have the money to purchase more PPE because most of their income is derived from elective surgeries which have all been suspended

14:40 - Surgical masks are designed to create a physical barrier between the wearer and patients

15:13 - The N95 respirator mask creates a seal and then filters airborne particles so that the wearer is not breathing in any viral particles

16:25 - Neither surgical masks nor N95 respirator masks are intended to be reused

17:13 - People wearing N95 masks who have not been trained to use them will not be protected from COVID-19 with the same efficacy as a healthcare provider who has been trained to use them

17:43 - N95 respirator masks only filter 95% of viral particles when used correctly. When used improperly, they are not significantly more effective than surgical or cloth masks.

19:58 - Never touch your face while wearing a mask

20:06 - Tie back hair so that you are not tempted to brush it out of your face

20:16 - Use medical tape to seal edges on the bridge of the nose and along the sides of the nose

21:19 - When putting on your mask, hold it by the straps or loops as far as possible from the piece that covers your face

21:30 - Position the mask along the bridge of the nose first, position it under your chin, and then fasten the attachments

21:42 - Do not touch the square portion of the mask that covers your face 

21:53 - To remove the mask, repeat this procedure and again avoid touching the square portion of the mask

22:25 - Wash cloth masks immediately after every use

22:30 - DO NOT remove your mask after leaving a store, allow it to drape around your neck, or place it in your bag or purse as the masks may be covered with viral particles

23:08 - Wash hands before and after putting on or removing a mask

23:19 - Wearing a mask and using it improperly may put the wearer at more risk of contracting COVID-19 than not wearing it at all

24:32 - Kristen explains the 6 options the CDC recommends for hospitals who do not have enough masks for their healthcare providers

27:56 - Using cloth masks is the absolute last resort recommended by the CDC because cloth masks are not considered effective PPE and their ability to protect HCPs is unknown

32:01 - The CDC has started to recommend that members of the American public wear cloth masks when outside of their homes

32:16 - Up to 25% of the people who are spreading the COVID-19 virus are asymptomatic 

32:55 - Cloth mask wearing in public has become very common in parts of Asia since the 2003 SARS epidemic 

33:56 - Community-wide wearing of masks protects the community because cloth masks are effective at preventing the spread of the virus when worn by the infected person

35:50 - A 2015 study found that cloth masks only blocked 3% of viral particles

36:29 - Some studies performed recently found that cloth masks could block as much as 60% of viral particles, but the design of the experiment raises questions about whether that means cloth masks will protect the wearer from COVID-19

37:38 - Individuals must continue to take all previous precautions (social distancing, hand washing, etc) even when wearing a cloth mask

39:10 - Some rudimentary cloth masks can be fashioned out of a bandana and some hair ties

39:22 - Some homemade cloth masks include filters made out of vacuum cleaner bags, air filters, or even panty liners

40:00 - Never touch the square portion of the mask when putting it on or taking it off, and make sure to wash your hands before and after touching the mask

40:07 - Frequent hand washing is still the best way to protect yourself from COVID-19

41:13 - If you are going to wear a mask, you still need to clean all the surface areas around you because the mask does not provide 100% protection from the virus

41:38 - Wear your mask until you return to your house and can put it directly into the washing machine

43:22 - Cloth masks can pose a health risk to immunocompromised wearers

47:10 - If you want to donate homemade masks to healthcare providers, contact your personal physician’s office and ask if they are accepting them. 

48:20 - Local police departments and grocery delivery workers may also be accepting donations of homemade masks

49:03 - Danielle invites listeners to join our new Facebook group @IFAiArthritis to learn more about this and other topics

49:17 - Private comments may be directed to AiArthritis via FB, Twitter, or Instagram message @IFAiArthritis or emailed to podcast@aiarthritis.org

49:31- Find this and all our episodes at www.aiarthritis.org/podcast, or visit www.aiarthritis.org/covid19 for all our COVID-19 related resources



Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!


If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.


JOIN TODAY! 

 

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).

Be sure to check out our top-rated show on  Feedspot!



Your Co-Hosts & Guests: Who is at the table this episode?

Show Patient Co-Host: Danielle Dass
Danielle is a career educator, wife, and mother of 3. She was diagnosed with Rheumatoid Arthritis and Primary Biliary Cholangitis after years of unproductive medical investigation. She is dedicated to educating fellow AiArthritis patients about the importance of liver health and metabolic testing. In her spare time, she also co-hosts a podcast with her husband and 10 year old daughter about the importance of film history for the next generation.

Listen to her podcast at https://bacea.podbean.com/
Guest Patient Co-Host: Kristen Ray
Kristen is the Founder and Co-Leader of the St Louis Support Group for the Spondylitis Association of America, which has been the face, voice and leading nationwide nonprofit organization educating, empowering and advocating for people living with Spondylitis and its related diseases. Kristen has also suffered from Ankylosing Spondylitis since a young age, intensified after a motor vehicle accident at age 16. Kristen works in the medical field, leads monthly support group meetings, and works on multiple projects with the Spondylitis Association of America including the International Map of Axial Spondyloarthritis (IMAS) is a research initiative assessing the impact and burden of axial spondyloarthritis (axSpA) from the patient’s perspective. The aim of this national and international collaboration is to generate insights into the real-life experiences of people living with the condition. Ultimately, these insights should support people living with axSpA in speaking up about their condition to help shape discussions towards improving quality of life.

Find more information at www.spondylitis.org, or locate your local support group at https://spondylitis.org/resources-support/support-resources/support-groups/


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