The Heart of Everything We Do
AiArthritis Voices puts patient-peer lived experience at the center of everything we do - continuously capturing what matters most to people affected by our diseases and turning those insights into action.
We are patients, too. AiArthritis is patient-led, and our work starts with peers listening to peers - combining our lived experiences to understand what people affected by AiArthritis diseases need most.
We listen every day through social media, podcasts, surveys, events, conversations, and more. When enough voices reveal common challenges, we identify issues to address. Then we bring the right people to the table to help us explore, co-create, and evaluate solutions.
Our peer-collected lived experiences drive the work. Together, our voices shape what we do about it.
How Voices Became Solutions
Why Join If We're Already Listening?
Because joining tells us you want to stay part of the conversation.
You don't have to sign up for your voice to count. When you respond to one of our social media questions, share an experience through our podcast, take a survey, or participate in a conversation, you're already contributing to AiArthritis Voices.
But when you officially join,
we can come back to you.
We'll learn a little about you, the perspective you bring, and what matters to you so we can invite you to relevant opportunities to:
- Share your experiences
- Take a quick survey or poll
- Join a discussion
- Help explore an issue
- Advise on or co-create a solution
- Evaluate and improve what we've developed
- There are also opportunities we can connect you to (sometimes paid) to serve on Advisory Panels
Who Should Join?
Our peers are at the heart of AiArthritis Voices.
That includes people diagnosed with an AiArthritis disease, those who suspect they may have one but are not yet diagnosed, parents and guardians of juvenile patients, caregivers, family members, friends, and others in the support network.
But patient-led doesn't mean patient-only.
Creating solutions that improve the patient journey often requires other perspectives at the table. We also invite health professionals, researchers, academics, policymakers, and other stakeholders to contribute when their experiences and expertise can help us better understand an issue or build a stronger solution.
Many voices contribute. Patient lived experience leads.
The AiArthritis Voices program, and coordinating online project platform, was made possible through community donations and with support provided by the following members of our Corporate Council - Impact Committee,